Let’s talk anxiety and online school

I know for some people online school is a lot easier for their anxiety. No physically having to go in. Interact with the real world. See people. But there are some parts of online school that I find even more anxiety provoking and people just don’t understand why so in the name of awareness raising I thought I’d share.

Discussion Boards

I don’t know why but posting on a discussion board stresses me out. Being able to do it is only a recent thing. I know it’s irrational so don’t go telling me that or to just get over it. The problem with having really low self esteem when you have those discussion boards where you can’t see answers until you comment. You may wonder why:

  • What if I’m wrong?
  • What if it looks like I haven’t tried?
  • What if it’s too much/too little?
  • What if I get negative responses?
  • What if people decide they don’t like me/I’m worthless/stupid because of what I post?

The virtual group task

Do we all hate these?

Especially when we all have our own commitments and some of us may be abroad so how the fuck are we supposed to make it work if we don’t have much mutually convenient time.

So why does this make me anxious. For me it’s the starting. It’s when no one reaches out to the group. No one takes the lead but you are too anxious to do so. Again pretty irrational. You may wonder why.

  • What if they think I’m a swot/nerd?
  • What if they think I have no life?
  • What if they think I’m being too pushy?
  • What if I don’t word it right?

It feels me with dread, it paralyses me and it makes me feel physically sick. I hope I’ll get more confident as the year goes on but right now that’s how it is.

How do you feel about online school and how has it affected your anxiety?

It’s never enough

I always feel like I’m not enough. Not good enough, not smart enough, not trying enough.

Sometimes it’s in the back of my mind other times, if something triggers this.

Someone doing something amazing whilst I feel I’m sitting there stagnant or going backwards.

Rejection upon rejection upon rejection.

Waiting for emails. Emails of yet more rejections or hopefully good news.

Scrolling down linkedin or legal insta to find everyone getting training contract offers when you have nothing.

Everyone else having confidence to start various initiatives and you not.

Because who would care? Who would help?

People say you don’t network in the right way.

You can’t maintain relationships with people because you pushed all your friends away in the second year of university when you had zero mental health.

You are just simply not enough.

I don’t know how much of this is my poor self esteem as a result of never feeling heard as a child. At school, by my family. A result of emotional neglect/abuse. Or how much of it is a result of being chronically ill and when your chronically ill society expects you to be extroadinary.

To reach goals that most people don’t reach and be an inspiration.

If you don’t your just lazy. A burden on everyone.

It doesn’t help that I genuinely want to reach said goals.

Personally I think it’s a combination of the two causing my feelings of never enough.

I already push myself so much to do things and to function and to live life as close to how I want it as possible that when I see other people meeting standards that I expect of myself I feel like I’m not enough. People say I should do more or atleast insinuate it but there is no way I can fit more in.

I need to try and climb as it’s the only exercise I can tolerate and being conditioned makes a massive difference to my pain levels. It also gives me life.

I’m leaving my job but up until said point I am having to drag myself through 8 hours a day. 8 hours where the pressure in my head feels unbearable, Where my vision will start to fade on sitting up and where the brain fog is so thick that I don’t really trust myself.

I’m doing law things alongside.

Moving home to try and take care of my health before I start my LPC.

I can’t fit more in.

I find it funny that we are expected to be inspiarations but if a healthy person got my symptoms for a week it’s okay for them to do the bare minimum.

Why is this? Why has society developed in this f*cked up abelist way? I know I’m not the only one who suffers because of it, so if you do to you are not alone and you are enough.

May was a Mess but that’s okay

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I quite like doing these monthly reviews so I think I’ll continue them as much as possible.  But May was a not very fun month. Fun things happened but my body definitely took the sacrifice until I found the d-ribose and the adrenaline I’m in right now. Yes I’m aware harnessing the adrenaline isn’t good ME management advice but I do what I do.

The beginning of May actually feels like a decade away right now but I decided to commit to an ME awareness daily photo challenge on Instagram which I actually completed, like what? Everyone who knows me knows I get to about day 15 of these challenges and give up. But with a lot of pre-preparation and sometimes posting two or three days in one I managed. When I could dedicate the physical and cognitive energy to photo taking I really enjoyed expressing my creativity and posting different content. But I also liked  how I could go through a wealth of photos on facebook, google photos, my phone and post old content if I didn’t have the energy or muse. There is now a picture of 9 year old me in a tree on Instagram (Where else would I be?).

I also got to see my family again and I am loving being fed and my dog and my fingerboard and there being a tree I can climb in my nans back garden. It’s probably not safe as it’s probably taller than a bouldering wall (getting down was terrifying) but my brother climbs it all the time and I’m competitive. Yes even against a 14 year old because if he’s better than me at anything he endlessly rubs it in.  Also trees and doorframes are all I can climb right now so if I’m in the vicinity of a tree and feeling vaguely well enough I will.

But my health was not vibing in May. In all the ways.

I spent the month a really not fun gastro flare because my body was like “Hi your doing too much for me to have the energy to digest food.” The only reason I’ve kept weight on is because my family feed me and eat the typical unhealthy westernised diet so the calorie density has been higher, especially with my evening meal. I’m really hoping my stomach works this month because I’m done with the agonising all consuming nausea but also scared of gaining weight. I weigh the least I have since a bad gastro flare four years ago and I weirdly feel worse about my body than I did at Christmas when I was heavier. But such is life. I can’t do huge amounts about it when living with my family. If I wasn’t working I’d make separate dinners for myself more but I really don’t have spare energy to cook and wash up the cooking every day or walk to Tesco and back for fruit whenever. My nausea is something I really should see a doctor over as even though I can’t commit to one end of the country I could atleast get some anti-emetics. Over the counter and herbal remedies are of really limited effect right now and no I can’t concentrate on my job effectively if the all consuming nausea hits. But I also can’t concentrate if I’m hungry so I can’t really win.

My bladder also waged a bit of war on me, although that’s been going on since before lockdown I found it more noticeable when trying to work. I should really see a doctor about that actually as it’s been really painful over the last few months but COVID and not being committal over staying in one part of the country.  It’s also kind of scaring me because from my limited none medically trained knowledge it sounds like I’m having retention issues which is a common EDS comorbidity.

I still have an elbow injury even though that’s had a lot more rest (Should really do something about it) and my LCL is still injured even though when I got it checked out I was told a month. That was three months ago. I hate it when medical professionals underestimate injuries because of a high pain tolerance or maybe I just heal slowly because of my EDS. Everything else that got injured during the same heel hook is better now though!

Migraines, pressure in the back of my head, migraine like headaches that aren’t actual migraines and pain in the rest of my body has been a constant battle. Yes another thing I should consult the GP about but I have 99 problems and I don’t know which to prioritise.

I was finding myself on the floor multiple times a day, although that did reduce at the end of the month by starting D-ribose and getting back on another supplement that I think I probably was on at some point but stopped because I couldn’t afford. It’s very weird living in an abelist family who don’t even believe that is a thing, collapsing multiple times a day but never in their sight or rarely because adrenaline is a wonderful thing. It’s honestly even more hilarious when your younger brother has issues with you not emptying the dishwasher and your dad gets in on the “Why can you do X but not Y?”

Especially when you can’t explain because they don’t let you get a word in and lets face it no one will ever understand ME until they have ME. No one will ever understand that yes I can do this thing but this thing makes me very dizzy and I have to work after lunch so no I can’t do this thing right now. I can do this thing but it’s unsafe for me as I often can’t feel my feet and am dizzy so if I am able to walk down the stairs carrying a hoover down and then hoovering the mess I made after exerting a lot of energy before now is something I need help with.

I did the hoovering. Not the carrying.

I feel like able bodied people also don’t understand that we’re allowed to have fun. And I’m not blaming my brother for his “Why can you climb a tree but not empty the dishwasher.”  But it’s something I’ve come across my other people who are old enough to educate themselves and allow themselves to be educated.

May also ended in a bit of a mental health crisis. I won’t go into details of why or what but it was terrifying, especially as I had been doing really well. Honestly if I had records of my recent anxiety and depression questionnaires I could prove it. (I have to do them before each therapy session.) But seriously being worse mentally, even if only for two days than you have been for two years is terrifying.

So May was not great but hopefully June will be better. On one of the last days of the Month I was able to walk for 10 minutes without too much PEM. Still some PEM but less.

I may go down to one post a week in June. It’s certainly not felt right to make two posts this week with everything going on. I’ve been sharing resources and info #blacklivesmatter related over on my IG stories @spoonielivingfree which will likely continue but writing a blog post on the matter when I can only come from my own white privileged view isn’t something that’s felt right. We need to share voices from black people without putting pressure on them to educate us. I may however write some criminal justice/sentencing pieces if I can find the energy although I’m not sure whether they’ll be posted here or somewhere else.

That was a tangent. But yeah, I’d like to do two posts if I can but it’s not something I’ll pressure myself to do!

How was May for you?

 

 

 

 

Dealing with rejection

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I don’t think I’ve already covered this, or if I have I’ve not dedicated an entire post to it. Which is strange considering just how much rejection I have faced.

At the end of April I was rejected from my dream job, although I was put on the reserve list so maybe if we keep our fingers and toes crossed it will come to me. Or not and something else will happen that was so meant to be.

And very unlike me, I dealt with it okay. Maybe I’ve experienced so much rejection that I’m immune to it.

I was able to appreciate that getting as far in the recruitment process as I did was an achievement in itself. Many people who get the job are a lot more qualified than me, or a lot more privileged and from better universities.

I was able to appreciate that rejection isn’t the end of the world. It doesn’t mean I’m not enough or I didn’t try hard enough.

It’s just life.

Life makes no sense sometimes especially when your dreams seem to just not be coming together. But I truly believe that one day it will all make sense. l

God has a plan.

He just doesn’t make us aware of that plan.

You are sick enough for help: Mental Health Awareness week

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It’s the end of mental health awareness week and honestly we shouldn’t need one but there we go, we still do. Although we have come a long way there is still a significant amount of stigma out there.

Today I want to talk about, well write about how we all have mental health and there is never a point where you are not sick enough for help. Be that therapy, counselling or medication or even just that little bit of extra support from family, friends and collegues.

Mental health is just like physical health. Sometimes it can be good, sometimes it can be bad, sometimes it can be somewhere inbetween and just like physical health we shouldn’t ignore it if we start to feel it going because if we do ignore it, it will likely get worse and have a knock on effect on other aspects of our life. If it gets worse, it’s harder to then get back under control.

Just like physical pain, it’s better to take action when the pains a 3/10 because once it gets out of control more and more needs to be done.

Ignoring your mental health and sacrificing it above all else in life isn’t a badge of honour, it isn’t a way to show how brilliant you are or how hard you try. Your not being pathetic if you take time out, get therapy, take medication that’s okay. You are valid. You are worthy. You are not wasting the time of healthcare professionals. Even if you live in the UK and are reliant on the NHS. If you think you are having enough of an issue with your mental health that simple self care isn’t helping and only you know that you are worthy of help. See your GP, self refer to therapy.

I know living in the UK it can be hard, especially as a teenager because CAHMS often only help you in a timely manner if your on your death bed and even then…. I won’t waste words ranting about CAHMS though.

Many trusts now offer self referral to therapy, although limited in their use for people like me with currently mild/moderate anxiety and depression this can be really helpful  I have a lot more anxiety than depression though! I’ve been really quite anxious these past few days just because my family don’t understand ME but the second I try to explain they start spewing abelist language on me. That’s an anxiety that’s hard to overcome, when the people who are meant to support you most don’t see nor understand your illness but it’s kind of your fault because have you really tried but the issue is your too anxious to try.

That was a tangent…

Although there’s still waiting lists it’s not the 6 months to many years that can be found with other forms of mental health treatment on the NHS.

You are sick enough, you are worthy and you are deserving. Remember it’s better to prevent these issues arising at all, through rest, be selfish once in a while. Self care is important, you shouldn’t burn yourself out trying to be everything for everyone.

The problem with Illness Bingos

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These bingos have been floating around Instagram for years, they’ve only recently popped back up into the stories of those whom I follow. Maybe due to pandemic caused boredom.

I find these bingos problematic, on many counts. Both the physical health ones and the mental health ones. This isn’t an attack on anyone I’ve seen doing them or anyone creating them because I’m sure many people don’t realise the issues with them. It’s just a harmless piece of fun right? Maybe… to you. But there are some real issues associated with them that I’d like to discuss.

With both the physical and mental health bingos create some sort of sick competition as to whose the sickest. Who can score the most with symptoms, treatments and comorbidities. There has been this toxic competition going round certain parts of the spoonie community before and it’s simply not okay. A place that many come to for support and a sense of community. A place that many people come to in order to feel less alone. It’s supposed to be a safe space and not a source of ones own illness imposter syndrome.

This can be even more damaging with the mental health bingos. It’s already common with mental illnesses for people to believe they’re not sick enough for treatment. These bingos make that worse.

Mental health bingos can also be hugely triggering, especially eating disorder bingos which often give ideas for behaviours that can be used or use numbers.

It hurts my heart to see these in the recovery community, where someone’s followers are often highly vulnerable.

The thing with Instagram and especially stories is that it’s hard to avoid taking in this information. Unless someone puts a trigger warning on before doing the bingo and you can then choose to click off of the story.

I know how hard that is when we have limited energy and when we may not realise the trigger as it doesn’t trigger us. But if you want to engage in these bingos I believe it’s the safest way to do so.

 

My Mental Health is Suffering in Lockdown

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And we are in week I don’t even know of lockdown. But it’s fair to say the lack of meaningful human interaction is starting to take it’s toll. I’m an introvert but even us introverts will start to crack if left alone with our thoughts for too long. I’m lucky I have access to social media and people to talk to virtually but I’m definitely starting to feel more low than usual.

My sleep schedule is non existent

I’ve started having anorexic thoughts again. Sometimes some really intense ones that have been hard to not give into.

My brain fog is worse and my ability to concentrate also worse.

There are things other people can do, which would help like they’re daily outdoor exercise which I’m not yet really well enough to do. Daily. (Although getting there)

I feel this social experiment COVID-19 has played on us leads to two questions being asked.

Will we have the mental health services and resources to help everyone after this?

Is there going to be more awareness of the fact that poor mental health in people with chronic illness is oftentimes secondary as a result of the isolation it causes?

I really hope so!

 

 

 

Mental health in the workplace

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Maybe this isn’t the best time for this blog considering the majority of the world is either not working or working from home but I feel like the same points still stand. And if anything not working/working from home can bring up more anxiety, and I predict even more so when the time comes to go back into the office.

A workplace environment can bring up a lot of anxiety, and resulting depression. It may also lead to eating disorder tendencies coming back due to anxieties about eating in front of people, not having sufficient breaks or not being able to eat the same food.

I know my mental health is often associated around the workplace. Be it thinking no one likes me or thinking I’m not good enough. I’ve also found myself getting anxious over how often I get up from my desk in the office environment. Especially in the office I’m in right now, where my job does not require me to get up to go to the printer on a regular basis.

I find as a perfectionist, the pressure gives me a lot of anxiety. The pressure to be perfect. Which is hard when I have chronic illnesses that make being perfect impossible.

If you find your job is negatively impacting your mental health remember it’s okay. Especially if transitioning to a new role. Take time for self care, take time for hobbies.

Try and find the positives.

Many workplaces also now have mental health first aiders if you find yourself in a crisis at work.

Remember to open up to others. Don’t bottle it up. You’ll likely be surprised to find that other people have been through similar things. We all have mental health and although we won’t all experience a clinically diagnosable mental illness in our lifetime, everyone will experience certain lows and a level of anxiety. Also sharing a problem really helps, bottling it up only makes it worse. If you have no one to share with 7Cupsoftea is a good website for this!

Don’t stress about what you can’t control. I know many people have been and are still worried about their job security during this pandemic. You can’t control that. So try not let it eat you away. By all means come up with a plan but don’t catastrophise.

It’s okay to get help. By this I mean professional help. If you feel you would benefit from therapy or medication then that’s okay. You do you. Do whatever helps you. (Providing it is safe, non-destructive and isn’t going to harm you or anyone else)

Finally, don’t beat yourself up. Your not weak. Your not pathetic. Your not melodramatic. Your human. Beating yourself up is only going to make your mental health worse.

Stay safe everyone. Look after your physical and mental wellbeing and I’ll see you in my next blog.

 

Finding the positives in lockdown

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The UK has been in lockdown since Monday evening. As I’ve been symptomatic and therefore in isolation. Today, before I realised I still had a fever and so should still isolate I went on an outing.

Only to the pharmacy two minutes from me, to get my prescriptions which I would have otherwise ran out of and to the Tesco opposite my flat to get milk and cereal. I have a food delivery tomorrow so I just needed some easy to eat stuff to tide me over as I’m not feeling 100% up to proper food.

The world has changed a lot in the last 8 days. I knew that, I’ve been watching the news but nothing could prepare me for that first step outdoors. That taste of freedom. Only a taste because fever means isolate past 7 days but bitterness aside…

I live in a city centre, a normally bustling, vibrant city centre. I live next to a pub and in close vicinity to many others. I normally hear people, music, cars. When I go into town it’s normally busy, even at 10am on a Saturday morning it’s busier than it was today.

Today it was pretty much dead. Yes I could see people, and certain people not abiding by the two meter rule but it was comparatively dead. There was tape down and barriers up in boots. No forms to sign when picking up medication.

It was like I got back from work 8 days ago to a normal functioning world. Yeah the situation was getting serious and the climbing walls had closed but the pub was open and busy as ever. The streets were also busy as ever.

And then I came out in some dystopian future. Some alternate universe.

As someone who was largely bedbound for 2 years I do sometimes forget how much of a change this is. But going out today made me realise that this virus has lead to all of us taking huge sacrifices. Huge lifestyle changes and it’s forced us to stop and slow down.

I certainly welcome that. I hope others will to. If I had to go work today because I’d already self isolated for 7 days and didn’t realise I had a fever this morning my body wouldn’t be coping. My body would just get the next virus, the next infection, the next injury. This year I’ve climbed so hard that I’ve had three relatively minor finger injuries, my hamstring and knee ligament injury which will take a couple of months to fully heal, an elbow injury, ankle injuries and many other lil niggles. I’ve pushed through work, tried to become a lawyer and since the end of January I’ve had a cold, a stomach virus, an ear infection, numerous bladder infections and now this virus, be it COVID-19 or not. My immune system isn’t as good as it was pre ME but it’s never normally that bad.

I was running my body into the ground. I haven’t worked a 5 day week all month. More like 3 day weeks maybe 4. This virus. Not just because I may have it but because of it’s effect on the country has forced me to slow down. It’s forced me to give my body what it wants. A chance to heal. A chance to function within my limits and to come back to work revitalised.  A chance to focus on rebuilding my body off of the wall, at a lower intensity and focusing on dealing with muscle imbalances so that when the walls open again I get less injuries.

It’s also given me a chance to reflect. To indulge in my off wall passions and think about what’s really important to me. And funnily enough, I’ve had more time to connect. Connect to people I’ve neglected in the past.

The situation is awful. For everyone. I know I’ve been feeling extra unwell these past eight days. The horrific cough, the breathing difficulties – not enough to need help but enough to feel like I can’t get enough air. Enough to mean I can’t sing or proof read my essay aloud like I normally would. The fever. I’ve also been extra weak and dizzy. I’ve spent the majority of these days horizontal on the couch and have intermittently had to crutch around as my legs have been so weak that I’ve needed to take that weight off them to get to the bathroom without crawling.

We’re all affected by this. Either directly or indirectly. But good will come from it and god will help us through.

Staying mentally sane in self isolation from the self isolation expert.

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The world is currently in an unprecedented state. Countries going into lockdown, boarders closing and asides from those of us who still have to go into work (Me, when it’s safe to do so) we are all being asked to stay inside our houses. What a dream! An actual dream. I’ve definitely been told that when I’ve been really sick with ME and largely stuck in the four walls of my bedroom.

Being stuck. In the confines of your house, or room, be it with family or alone can be really bad for your mental health and your relationships with others. I understand that, I know that. Being stuck anywhere, especially if you are easily bored, irritated, like to move and exercise and benefit from changes of scenery is hard. So as an expert in this field and as someone currently self isolating due to COVID-19 symptoms + I’m at a higher risk than the average person I thought it would be wise to share some tips.

  1. Don’t think of it as being stuck. Change your perspective, think of your home as your sanctuary, your castle, your safe haven. If you change the dialogue around how you feel to more positive dialogue this can definitely help keep your mind in check.
  2.  Try to keep things clean and tidy – tidy space tidy mind. This is something I really struggled with when bedbound and still struggle with but it definitely makes a difference.
  3. Get dressed, shower, make an effort to look pretty – I promise you it makes so much of a difference to your mental health if you make this extra bit of effort even if your not going to see anyone. I’m not saying you need to wear a full suit or a full face of make up but get out of your pyjamas.
  4. Lists lists lists – it doesn’t need to be a full schedule of your day hour by hour if that’s not your vibe but if there’s things you know you need to do write them down on a to do list. It is very satisfying to get them done and will at least reduce the social media time wasting feeling behaviour that I feel we’re all beating ourselves up over at this time.
  5. Stay connected. We may be distant geographically but we can stay together. Use social media to stay connected, find live streamed events and activities, phone your nan.
  6. But be mindful of how your using social media! There is a lot of anger out there right now. Curate your feed. Spread positivity and not hate. Don’t spend hours looking at the news, it’s nothing but COVID-19.
  7. Move your body – if you can. It doesn’t need to be much at all and can be just a few floor based/bed based exercises or if your fit, healthy and feeling it can be much more intense, especially if your able to panic buy workout equipment. Movement is really important for mental health, I find it is definitely helping set me up for my day and put me in a positive mindset no matter how small.
  8. Try something new. Do that thing you always wanted to do but never had the time. Learn that language, learn to draw, read that book, watch that TV show. Having a new hobby that can be done inside the house can fill the gap left by that hobby you are now unable to do for the time being and take your mind of the news.
  9. If you have space make the most of it. If your lucky enough to have a garden use it, if you have separate rooms that you can go into – use them. If you only have one room then try and use different sections of the room (I.e do your best to not stay in or on your bed all day)
  10. Don’t be too hard on yourself! I feel like there is a lot of pressure to be productive and monetize our time in social isolation. To get fit and stay in shape. Don’t give into it. It is only natural to be spending more time on social media in these times, to want to just eat sugar and just not be very focused. Do what you need to do your you, and only you. You are doing the best you can and we will all get through this!