COVID-19, Self isolation and ME

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I know we are all sick of hearing about it. There is nothing else in the news but this actually quite disastrous global pandemic. Not just disastrous health wise, but disastrous business wise and for individuals job security and financial security. We have seen mass hysteria, panic buying loo roll of all things (Plz send me some if you have some spare) and lots of vague advice. Today I want to write about the effect of the COVID-19 pandemic on me, and more specifically me and my ME.

So in the UK ME is a grey area with regards to the guidelines for at risk people to self isolate and stay away from busy offices etc. We’re not entitled to flu jabs unless we have comorbid conditions that do entitle us to such flu jabs. But the ME association believe we are included in the vulnerable population that should self isolate (https://www.meassociation.org.uk/2020/03/coronavirus-covid-19-latest-government-advice-and-what-it-means-for-people-with-me-cfs-17-march-2020/) and recognise the risk of a significant, prolonged and potentially severe relapse if we catch COVID-19 and I know Jennifer Brea has been tweeting her heart out about COVID-19, neurological symptoms and various post virus statistics for previous outbreaks. We know any virus can cause a flare up. A cold has caused one that I’m still recovering from. It’s been over a month. Now Covid-19 is more comparable to the flu than the common cold – we also don’t know how it will effect people with ME and I myself – whilst I can afford to do so (which won’t be long) am not prepared to take that risk.

It  may be a risky decision. A decision that many in my life will not approve of (My family especially). But it was not a decision taken lightly. I have a full time job, a job I’m in probation for and therefore by doing this I may lose it – which considering the likely economic climate come June when probation ends is a risk. The potential loss of income is a risk considering my mad expensive rent and the fact that I don’t know how my parents would react to me deciding to move home in august, work part time and look after my health. (Yes partly my fault because I don’t open up to them).

But my immune system is down, this morning I came down with what I’m pretty sure is an ear infection. You know that classic childhood middle ear infection. I’m 22. My body is weak and I need to acknowledge that. If the conspiracy that coronavirus went round my city in December/January isn’t true and I just escaped because I was stronger then. In terms of my immunity (and L-Lysine which I’m gonna resolve to take every day again because it definitely meant aside from some tonsillitis in November I had a persistent low grade cold instead of constantly getting sick). I’m also not back from the flare from the cold I had end of January/early February (I didn’t cough much I don’t think it was coronavirus. Started with a horrific sore throat and then materialised).  If I get a virus now it could and likely would knock me out. Not just for a week or two but for months.

Health comes first. It’s difficult, it’s scary. Not only because of financial consequences and peoples perceptions . But because being stuck in the house reminds me of when my ME forced me to stay largely in the house and horizontal. There’s trauma there. Trauma that may need to be worked through if I am to stay sane for however long I stay off work. And not only stay sane but come back to work in a mentally stronger place with higher concentration etc. The trauma is the scariest part of this. Never did I see myself willingly largely confining myself to my flat by choice because life is better experienced outside of these four walls. But I also didn’t forsee a pandemic and to protect my current health and my future health it was a decision that had to be made.

 

 

2 thoughts on “COVID-19, Self isolation and ME

  1. lavenderandlevity March 18, 2020 / 8:51 pm

    Hugs. The UK probably should be shutting down around you right about now. Here’s hoping it – and the U.S. – catches up to you soon.

    • Spooonielivingfree March 18, 2020 / 9:25 pm

      Lets hope so, schools are closing Friday. We had the largest increase in cases today and still not everyone is being tested. So what is 2,000 could actually be 52,000. Happy the pub is silent tonight. People might be finally taking this virus seriously!

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