Words from an ME flare

I’m in the midst of an ME flare, something I should have seen coming. Something I should have got a grip on the second I noticed it starting nearly a month ago now. Many thoughts have gone through my head. If only I took a sick day at the time it started. What if this is now my new baseline and even sitting up feels like running a marathon again. What if I lose my spirit, my soul and stop climbing. (Spoiler alert, I won’t. But what if I’m forced to). Climbing is my identity, my passion and my sanctuary. I can’t bare to lose it again.

That aside, living with ME is HARD. Especially in a flare up. When everything is so unknown and you are so unbelievably drained that you can’t even put up a false front anymore. When you feel all the guilt, all the worry that no one believes you and thinks your just trying to get out of life and the fear. It can be hard to not let it take over and mess with your mental health, which is really needed during these times.

It’s hard to go through your body being so drained that you just can’t anything. Living with an illness more commonly known as “chronic fatigue syndrome” when it’s more than just fatigue. It’s impossible for people to understand due to the fluctuations in and dare I say it, the name and lack of research into the illness. No one sees us at our worst and often people see us looking okay when the reality is we feel the opposite.

In these times, when you have 101 things to do and aren’t up to one of them it’s important to have grace and alongside that have faith that it will get better. You can only do so much and sometimes flare ups happen with no reason behind them and no fault of your own. They just happen.

I find my faith helps me. Cheesy as it sounds and I know it doesn’t help some people but god does have a plan. I may not be a practising Christian in the sense that alongside other commitments I do not have the spoons to go to church. Nethertheless, dealing with what life throws at me with grace and having that faith is a key to me coping with this and not getting eaten up by it.

It’s hard and it takes practice but it’s so so necessary to deal with this chronic illness life.

 

 

4 thoughts on “Words from an ME flare

  1. geckojudo March 12, 2020 / 8:55 pm

    I’m sorry you have to deal with a chronic illness such as this, but you are right when you say that God has a plan. I know what chronic illness that people can’t “see” is like to live with. Stigma and judgment suck, but climbing is what God has given me to cope with it, and that has literally saved my life. Climb on, Friend, and never give up! I’m cheering you on!

    • Spooonielivingfree March 14, 2020 / 6:05 pm

      Thankyou, yeah climbing is so important to me. don’t know what I’m gonna do about corona if the gyms close or I get a cough/fever and have to self isolate. Or if I decide it’s not worth the risk…

  2. jesusluvsall March 12, 2020 / 9:03 pm

    Being a Christian is not about what we do but who we are and who we believe in. Jesus knows your struggles and his grace is there for you.

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