I feel like this is round 2 of “if your well enough to do x then you can work.” But god am I angry and upset and generally don’t like my job and no ones even done anything major yet. Also haven’t been off sick despite severe pain because god forbid people see me have a life.
I’m in a really bad pain flare this week. Endo = fibro going haywire and later on will lead to HSD going haywire. I’m also normal person sick which doesn’t help matters and incredibly busy! (Doing things I enjoy and want to do but still.)
So I guess it doesn’t take a lot to piss me off and make me feel out of sorts. Functioning at a v high level I.e being out of the house other than to sleep with 8/10 endo pain is fucking hard and yes makes me easily irritated with peoples ignorance to the realities of living with multiple chronic illnesses.
I once said to my friend that if I got signed off sick I would climb every day and okay. Maybe not every day cause bodies need breaks and only if i wasn’t signed off sick cause I had to have a surgery or something. But near enough. I stand by that and this post will tell you why.
A) I have HSD and H-EDS has been thrown around a few times. One way to combat these illnesses or atleast that part that causes joint dislocations is to be hyper strong. Our tendons are under more stress than the average human because our joints hyperextend. Building muscles helps prevent injury and pain. In addition to this we also seem to start to decondition quicker. Meaning. I need to climb. Climbing is the only exercise I can do that doesn’t make my ME worse and the only exercise that relives that awful brain swelling feeling that causes so much dizziness. Don’t ask me why don’t ask me how. But it is. Even gentle Pilates will leave me stuck on the bedroom floor. Climbing is my physio. It’s my road to recovery.
B) My mental wellbeing is also important. Climbing makes me happy. It makes life worth living. It pushes me to be accountable to myself. Makes me better at taking my supplements, try to get adequate rest and eat a better diet. All of these things are hella expensive and take a lot of commitment. I would much rather spend my money on fun but this is the reality and when I climb, I remember how far I’ve come and that I need to do my best to balance everything. Tagged onto this is I need to see people. Life with a chronic illness is incredibly isolating. My gym is very social I love it. It is almost impossible to go through a climbing session without speaking to someone. My view to health is that your physical wellbeing affects your mental wellbeing and vice versa. If you want a healthy happy Hannah she needs to climb.
C) There is a big difference between working 8 hours a day and having a short sesh at the gym or a chill social sesh where you spend more time laying or sitting on the mats than climbing. This is especially true considering the different types of energy. Yes climbing is cognitive but not in the same way as reading and analysing information for 8 hours a day. It can be so easy to be quick to judge as to whether someone is faking or not. I know, I too have been guilty of this in the past. Not necessarily faking but just picking and choosing.
I urge everyone to be more mindful and maybe think a little more before judging. It can be hard to see something from the disabled persons side even if your disabled because we’re all so unique but try and if you need to ask questions, ask ahead.